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9th Annual International
Erdheim-Chester Disease Symposium
April 26 - April 28, 2023 • Rochester, MN, USA
Collaboration for Erdheim - Chester Disease Care & Research
+ Adult Histiocytic Disorders
The International ECD Medical Symposium is an invaluable opportunity to collaborate with other physicians studying and treating histiocytosis around the world. Topics may include research study updates and findings, complex case discussions, targeted therapies, and associated disorders, such as Rosai-Dorfman and adult LCH.
Co-Hosts
Dr. Ronald S. Go
Chair, Core/Consultative Hematology
Mayo Clinic, Rochester, MN, USA
Dr. Gaurav Goyal
Assistant Professor, Hematology-Oncology
University of Alabama, Birmingham, AL, USA
Mayo Clinic
200 1st St SW
Rochester, MN 55905
Wednesday, April 26, 2:00 PM to
Friday, April 28, 5:00 PM
Medical professionals interested in learning or collaborating more on adult histiocytic disorders such as Erdheim-Chester disease (ECD), Rosai-Dorfman disease (RDD), Langerhans cell histiocytosis (LCH) are encouraged to participate. The $300 registration fee for the 3-day event includes access to all conference sessions, breakfast, lunch, and refreshments during conference break times.
Event 1 - Care Center Meeting
Collaborate and Grow
Wednesday, April 26
2:00 pm to 5:00 pm
ECD Referral and Emerging Care Center physicians are encouraged to attend this ECD Care Center meeting. This gathering seeks to help the ECD Care Center Network work together in the best way possible for the patients' well-being. All specialists interested in becoming an ECD Care Center are welcome to attend this meeting as well.
Event 2 - Welcome Social
Meet and Greet
Wednesday, April 26
6:00 pm to 8:00 pm
The Welcome Social is a social time that offers an opportunity for fellowship and networking among the Medical Symposium attendees and the ECDGA Board of Directors in attendance.
Event 3 - Medical Symposium
Learn and Share
Thursday, April 27
9:00 am to 5:00 pm
Presentations will be provided by ECD-knowledgeable physicians on the basic science of the disease, treatment experience, comprehensive organ involvement, and case studies. Submit your abstract for presentation now.
PATIENT & FAMILY EVENTS
Medical professionals are also encouraged to participate in the reception for family members and/or a meeting day to include presentations by treating experts in the field.
Family Welcome Reception
Thursday, April 27 | 6:00 pm to 8:00 pm
Following the Medical Symposium, all event attendees are welcome to attend this event to encourage connections between the patients and medical professionals. Hor d’oeuvres will be served.
Family & Patient Gathering
Friday, April 28 | 9:00 am to 5:00 pm
Medical speakers knowledgeable in current ECD treatments and care will present helpful information to families and other treating physicians.
If you are a physician but will only be attending the patient meeting, you may register at this link.
Co-sponsored by Mayo Clinic
Interested in hearing a specific topic on a panel discussion at the medical meeting? Send us your idea or participation request.
Interested in presenting a topic at the patient and family meeting? Please contact us.
SUPPORT US
Enjoy these connections? Help us continue making these annual meetings possible by donating. Your support is appreciated!
Registration Form
The schedule of events is listed below. Your one $300 registration fee will allow entry for all events. (The following screen will request notice for each event you are planning to attend.) Any updates to these events will be communicated to all registrants, including the group hotel pages and the meeting agenda.
Schedule of Events
Event Details | Date & Time | Location |
Care Center Meeting | Wed. 4/26/23 | Mayo Clinic |
Medical Professional Reception | Wed. 4/26/23 | TBA |
Medical Symposium | Thurs. 4/27/23 | Mayo Clinic |
Welcome Reception for Families & Physicians | Thurs. 4/27/23 | TBA |
Patient & Family Gathering | Friday 4/28/23 | TBA |
We look forward to seeing you at this year's events! Registration confirmation is on its way to your inbox now.
Please stay tuned in to your emails for more information about the meeting in the coming months.
If you are interested in speaking at the Patient & Family Gathering, please let us know what topics you would be interested in presenting to the families and other clinicians.
If you have questions about the event please email Ben Frech at Ben.Frech@erdheim-chester.org
Information on hotels and lodging options will be available soon.
For event-related questions :
Ben Frech | ECDGA Communications Manager
E: Ben.Frech@erdheim-chester.org
T: 740-856-5519
Love these connections? Help us keep these meetings and other initiatives going all year round by donating.